Answers....Finally!

Yesterday afternoon we got a phone call from Callen's hemotologist. Although they told us it was highly unlikely they would find anything on the first round of labs....they DID!! Callen's blood came up positive for an antigen agains her neutrophils (a type of white blood cell). She has now been diagnosed with Autoimmune Neutropenia. This means that her body does not recognize her neutrophils so it sees them as enemies and in turn produces an antigen to attack them. So although she produces neutrophiles her body destroys them before they can build up and be there to fight off any infections. The Dr. said that she can still be treated pretty normal we just have to be more cautious and it will be alot more serious if she does catch something, she will have to go in for antibiotic shots to help her body fight off infections.

The Good part about all of this is that she will likely outgrow this within the next couple of years. I read that 80% of babies that get this spontaneously outgrow it within 2 years of diagnosis. SO... although it might be a rough two years with a very paranoid mom, Callen will hopefully outgrow this and can act just like a normal child in a couple of years. I know this may not sound like good news but since in the back of my mind i've been terrified that Callen had some kind of cancer and is going to die, to me..... this sounds like really good news!

Also, great news, we shouldn't have any more trips to San Antonio to see the Dr., he just told me that she will need to get tested every 3 months to monitor her neutrophil count.

SO.... i'm feeling pretty good lately, it is really nice to just have some answers instead of having no idea what's wrong.

Also, thank you to all of you for your kind words and your support, I have so many good friends that have been so sweet to ask how we are doing and offer assistance!

UPT Graduation!

Finally, after a long year of pilot training we are finally done! Dan received his aeronautical rating as well as his wings, such a big accomplishment. I am so very proud of Dan and all of his hard work this past year. I know it hasn't been easy for him but he has done such a great job both as a student and as a husband and father. It was a great week for us, we were able to do all kinds of fun activities that are included in graduation. We were also able to have both Dan's parents and sister here as well as my parents for the last week and on the day of Graduation Dan's aunt and uncle drove down from Austin to be with us. Here are a few pictures from all the activities.

We all were able to take our turn flying the T-1 Simulator

The Retreat/fly over ceremony

Dan Receiving his wings from Col. Deucette

I was able to pin Dan's wings on, it was a big honor

Dan broke his first set of wings and presented the other half to his dad, it is suppose to symbolize luck throughout his flying carreer by being the only wings that will ever be broken.

Isn't he cute!! :)

Uncle doug and Aunt Sue

My parents

My parents, us, Dan's Parents

Dan and his Dad. His Dad was a pilot in the Navy

Callen Update

So I've had alot of people ask me how Callen has been doing. It has been pretty up and down lately. She had another week's battle with fevers and her Neutrophil (white blood cell) count went down again after going up slightly. We made the trip to San Antonio again, they had results back from one of her previous labs that said she had been negative for Roseola, so basically the Dr's are back to where we started, which is having absolutely no idea what is causing her to have no white blood cells. They basically told me it could be anything from a number of various autoimmune dissorder she was born with, chronic benign neutropenia which she has a 50% chance of outgrowing by age 5, her body could be attacking itself, all the way up to worst case it could be some form of cancer.

SO... they took as much blood as they could afford to take from her and sent it off to someplace in California for more labs. They said most likely since it could be so many things most likely we won't find anything out on the first round of labs and there will be many more rounds of bloodwork before we get any answers. We're just hoping to have some kind of clue which direction to even take for the next labs. Once the fevers go away and Callen starts eating and sleeping again she really looks and acts perfectly healthy. So right now she is doing well, she's my happy girl. Since she is so severely neutropenic (low neutrophils) we just have to be super cautious about where we take her and what kind of germs she might pick up while she's there. So we're slowly starting to actually get her out of the house, we took her to a couple graduation events and we took her to church. I've never been one of those germaphobic people that washes my hands nonstop but I think i've been keeping the hand sanitizer companies in business lately!!

Anyway, that is what's going on in the life of Callen, hopefully we'll get this all figured out soon so she can always be my happy girl.

Thanksgiving

So I know I'm a little late but we had a Wonderful Thansgiving! We took a trip up to Austin to visit Dan's Aunt and Uncle. They treated us SO well! We had such a great time! We had a wonderful dinner of course and did a lot of relaxing and games with the family. They are such fun to hang out with, it is nice to have someone close! Uncle Doug and Aunt Sue were so sweet, they watched callen for us while we did all sorts of exciting things (date night at the Melting Pot..mmmmm, Watching the new Bond movie, and black light mini golfing!) I love getting alone time with my hubby! What a great trip, and the best part of the whole thing... I didn't have to cook at all!
I hope everyone's thanksgiving was a great as ours!

Drop Night

For those of you who don't speak "Air Force" Drop night is when you get your Airplane assignment. Last night was our Drop Night. We found out Dan will be flying the....

KC-135

Stationed in....

Kadena AFB, Japan (it is in Okinawa)

Here is the base

A beach in Okinawa

Ok, so I have to admit I was VERY shocked about our assignment, and a little angry about the ranking system of Dan's class since this really wasn't very high on our "dream sheet." However, I am excited to live on a tropical island and to have the adventure of living in a foreign country. SO, I think it will take me a little while to get used to the idea, but probably somewhere around 6-7 months from now we will be heading off to Japan for the next 3 years!!

If it's not one thing, it's another....

As many of you already know Callen has been sick again. I don't think it has anything to do with last time but it was stressful nonetheless. It all started last Monday when Callen woke up from her nap, she felt really warm so I took her temp. It was 103.8, so I gave her Tylenol and it came down a little, she had a fever through the night at at 3 in the morning it was 104.5 so we took her to the ER. The people at the ER made us feel dumb for going in, and took her temperature wrong, they said it was normal but I could tell it wasn't, so I asked them to re-take it, they were not happy but finaly did and it was 102, after the tylenol, anyway they said ther wasn't anything they could do so they sent us home.

The next night she was up all night and her fever was up to 105.4, I just alternated motrin and tylenol but it only brought her fever down to the 101 range. I got her into the clinic here on base and they decided to do some tests to find out why she had such a high fever. So the Dr. ordered bloodwork, a urine sample, and a chest x-ray. Dan showed up towards the end of the appt. an waited with me for lab results. The Nurse came back to get us and we could tell by the look on his face it wasn't good news. He got us back to the room and told us they were starting an IV. I asked why and all he said was "doctor's orders."

Then the Dr. comes in and said that she was Neutropenic... ??? What's that? That means that her Neutrophils which are the main white blood cells were severely low. The Dr. Said they should be above 1500, anything below that is low, anything below 1000 was moderately low and anything below 500 is severely low. Hers were at 250. So the Dr. told us she was starting an IV to get her blood pressure up and they were giving her 2 shots of antibiotics and the Ambulance was on the way to transport us to San Antonio to the hospital there. At this point I am crying uncontrolably and my head is going a million miles an hour thinking she has leukemia and shes going to die etc. etc. You know how imaginations work.

So, for the first time I rode in an ambulance... it really is not comfortable at all. We got checked into the hospital Wed. evening where they did more bloodwork and the doctors checked her out. We stayed in the hospital until Saturday while her Neutrophil count continued to go down but she seemed to be improving. We finally were able to get her to eat and drink so we could take the IV out and she started to get a little rash. they looked at her blood cells and didn't se anything abnormal that would indicate Cancer... Whew. Because of the high temperatures and the rash the Doctors think she got the virus Roseola but for some reason it totally wiped out her immune system. With her white blood cells that low they told us if she happened to get anything her body wouldn't be able to mount a defense.

Saturday afternoon they said since Callen had gone over 24 hours without a fever they would release us to stay in a hotel off base but we had to come back in on Monday for more bloodwork. So this morning I took her in for her tests and when the lab results came back her Neutrophil count was down to 40. Nobody has any answers why it keeps going down other than it will take awhile for her body to recover. They said it could take up to 2 months for her White blood cells to go back to normal. So even though her count was down to 40 they said that she didn't have a fever, she looked fine, and they are pretty sure it was Roseola, they said we could go home and just re-test her the end of this week. SO, Callen and I were able to come home from San Antonio today. She has been acting like she feels fine, so that makes me feel good but I really wish her blood count would go back up. They sent some bloodwork off to make sure it was Roseola but we won't have those results back for 3-6 weeks.

My poor baby, it is so hard to watch them in pain, I was counting up on the way home and with all the IV's and bloodwork, she was poked 10 times and had 2 shots within the last 6 days...no wonder she is still clingy. They had her hookeed up to a heartrate monitor in the hospital and everytime a nurse/doctor would walk in her heartrate would shoot up 30 beats, poor thing, she was terrified of them. What an ordeal! I am really glad to be home and Callen was able to go outside and play and she really liked that.

Anyway, thank you all for your prayers and support, we seriously have the best friends. I appreciate all of you and everything you have done for our family. I have to be super careful not to expose her to any germs, but for now she's happy and healthy and we are glad to have our baby girl home!

On, a more happy note callen finally started say mommy... well ok not exactly, she calls me
"ma nommy nommy" but hey, that's close enough right?

FALL (catching up!)

so, i know I have been lost from the blogging world for awhile, I got hooked on the Twilight books (along with everyone else I know) and have been doing that instead of blogging during nap times and bedtime. Well, I am on the 4th and last book so hopefully I will be alive to the world again soon. However my brother mentioned to me he was sad that I had not updated my blog lately so I am taking a break from Twilight to update a little.

I have to say, I LOVE fall! I love the leaves changing and the weather and the smell in the air and all of the festivities that come with it! It is just one of my favorite times of the year. So far fall has been so fun for our little family. We have already done so many exciting things!

I've uploaded some pictures from a few of them, enjoy!

Fall Festival

Riding on the HayRide out to the "pumpkin patch"
Taking cute pictures with all the HuGE Pumpkins!

Playing in the tubes at the playground at Fall Fest

Attempting to ride the Pony... right after I snapped this picture Callen started crying and clawing her way back up Dan, she didn't want ANYThING to do with sitting on the horse, she wanted to pet it, but everytime we tried to sit her on it she started screaming.

Painting Pumpkins

(Before)

After.....

Halloween Parties

(Our little ladybug)

(next year callen will fit into a Pebbles costume.. i'm excited!)

ER Morning..

so this morning Dan was so sweet, he got up with Callen and let me sleep in. Well, shortly after he got up I hear a loud noise and then I hear Callen screaming in her room. I also hear dan with her. So I get up and go find out what's going on, Dan told me that Callen had fallen off of her changing table. He was ignoring her crying and trying to continue getting her dressed...ummm .. yeah, so of course I scoop her up to try and console her and then start asking questions like, how did she fall? how did she land? Did she hit her head? Why weren't you comforting her? To all fo these he said "I dont know.." I continued to try and console her which was not working. Then I start to see the bump on her head forming, so of course I freak out and made Dan call the on-call Dr., he said we should take her in to get checked out.

So we took her to the ER (luckily at 8:00 on a Saturday morning they're not busy) so we got right in and the Dr. said she seemed fine, he took an X-ray and said everything looked great and to take her home and just watch her for awhile.

ugggg, scary. I hate hospitals and more than that I HATE taking Callen to hospitals. That poor child has had more x-rays and IV's than Dan and I have combined and she's only 1. \

She has been fine all day, maybe a little fussy but she has a big bruise on her forhead and under her eye, I feel like a horrible parent. My poor baby :(

I'm so grateful she seems ok though, she's such a tough baby, always a little trooper. It's times like this when you realize how precious they are and even though there are days when I feel at my wits end I honestly don't know what I would do without her. I truly am blessed to have such a beautiful baby girl.

Action Packed Weekend!

We had a super exciting weekend! Dan's Brother Doug and his wife Pam came to visit with their 3 mo. old baby girl Hannah. It was so much fun to have them, we hadn't seen Hannah yet so it was incredible to see my only neice for the first time. She was such a little cutie! She was so god the whole weekend and she is adorable! It was neat to see Callen and Hannah together. I can tell they're going to be best buds soon.

The first day they were here we took them out to the lake. It was pretty choppy so we didn't get much skiing done, we did a little tubing but it was gorgeous and just enjoyable to be out on the lake. (and I got a little more comfortable with driving the boat). Callen loved the boat this time, she was so good for us.

Hannah slept most of the time, she was such a little angel. The life vest was just a little too big :)

Doug, Pam, and Hannah.

Hannah LOVED watching Callen move all over. Callen tried pushing Hannah in the swing and had fun playing "Whac a Mole" when Hannah's feet kept dissappearing back into the swing under the tray. It was hilarious!
Hannah and Callen loved their time at the park.

Doug and Dan with their girls, isn't this just adorable.

Today is actually Callen's first birthday, however we wanted to celebrate while Doug and Pam were here with us so we had Callen's party on Sunday. It was a blast. We had lots of friends come and they really made the party great. We had a cookout and then had lots of cake and ice cream. Callen didn't really dive into her cake but she did eventually start stabbing it with the ice cream cone, although I don't think she really ate any.

Callen's First Birthday Cake

A castle cake for a princess

She really didnt like the hat much :)


Callen was super spoiled by all of her friends, she got a LOT of toys. She LOVES all of them except there is a flashligt cow that moo's and for some reason she is terrified of it! She runs away when we bring it out and hides behind things to get away. It's pretty funny, i'm sure she'll get used to it soon!

Thank you to everyone for making the party great!

I can't believe she is already 1. Time has just flown by lately. She is so much fun, I really need to start enjoying every minute, she'll be all grown before I know it!